The A-List is the collective voice of those living with Alzheimer’s and other dementias, at-risk adults, caregivers and families, who demand that their preferences are heard and respected by the research community.
Alzheimer’s Disease Research Centers
The National Institute on Aging funds Alzheimer’s Disease Centers (ADCs) at major medical institutions across the United States. For your convenience, The NIA Directory of ADCs is included at the end of this resource guide, with direct contact information, to inquire about current research studies and opportunities to be a research volunteer.
Alzheimer’s Drug Discovery Foundation
ADDF is an organization whose mission is to rapidly accelerate the discovery of drugs to prevent, treat, and cure Alzheimer’s disease.
Alzheimer’s Prevention Registry
Led by Banner Alzheimer’s Institute, this registry unites leading researchers with people who are interested in taking part in Alzheimer’s studies.
Being Patient is an editorially independent news site covering the latest Alzheimer’s research.
Brain Health Registry
This registry recruits and observes people who answer online questions about health, lifestyle, and medical history and take online brain tests. The goal is to build a large pool of potential research participants for clinical trials, reducing the time and cost of research.
Cure Alzheimer’s Fund
Cure Alzheimer’s Fund is a nonprofit organization supporting the best scientific minds in the field of Alzheimer’s research.
The Cleveland Clinic provides an interactive platform and an online resource center where you can browse brain health information anonymously. You can receive current news, articles, tips and recommendations by providing your email, register for a free brain check, brain performance assessments, and clinical trials and current scientific news and updates on prevention, early detection and treatment of brain disease.
Clinical Trials and Me
Find symptomatic therapeutic trials in your area.
Connecting Alzheimer’s prevention studies with genetic testing (through free cheek swab kits) to match volunteers with research opportunities.
John Douglas French Alzheimer’s Foundation
JDFAF is a research organization focused on novel areas generally not being explored by other organizations.
National Institutes of Health
This is a searchable registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. This gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
This is an NIH funded initiative to connect people who are trying to find research studies, and researchers seeking people to participant in their studies.
Alzheimer’s Association TrialMatch is a clinical trial matching service that generates customized lists of studies based on user-provided information.